PaulB thank you for your response. We had a remote consult with the head of one of the top Cancer Centers in the country, which we did outside of our insurance. He discouraged us from moving forward with a neck dissection until the 12-16 week time period. He felt that many of the HPV nodes did resolve during that time. He also did not see benefit from the CT and FNA this early in the recovery process. In fact said they do not do FNA at all. He said they base decisions on the PET results and do not do any FNAs. He did encourage us that if it is needed he felt the neck dissection should be well tolerated. So, he gave us conflicting information and direction from our surgeon who is in our insurance network. So we remain confused Yes, as you noted we seem to be caught in an emerging and changing attitude about HPV nodes. Don't know what we will do at this point. Reaching out for direction from other professionals.


Wife to DP. DX SCC BOT 1/31/17
First treatment 2/27/2017 Cisplatin 3 times and IMRT
Last treatment 4/18/2017
Clear PET 7/13/2017
PEG removed 8/4/2017