Stef, adding my welcome. You've come to the right place for help and camaraderie, and you're now a part of our family!

Your story is similar to my own and I'm sure with your great attitude you'll get through treatment with flying colors. I too was diagnosed with a branchial cleft cyst. The first time they did a FNA it came up benign; it was only after removal that it tested positive for SCC.

The notion of a PEG isn't a bad one. I found it incredibly difficult to swallow even water after a couple of weeks of rads. I got to the end, but on reflection wish I'd had one put in. That is, my RO told me the treatment was tough either way but that I could get through it without. And I did. But it wasn't easy.

I also found that the radiation did me in for work. Luckily as a freelance writer I could just take a break. After a few weeks I found I didn't have the energy to sit up for more than 10 minutes at a time, and it took a few months afterward for me to regain my normal energy levels.

Please ask any and all questions here - it's a good bet that someone will have gone through it and offer useful suggestions.

Courage!


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18