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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Ive sent you a private message with a plan to get your husband back on board. Click on the tiny flashing envelope next to the My Stuff tab to get your messages. My suggestion has been tried and worked successfully here for many caregivers so I think it may help your husband.
Losing weight is a sure sign his intake is not what it needs to be. Every single day he must take in at least 2500 calories and 48-64 oz of water. With losing so much weight in such a short amount of time, his intake could even be higher like 300 or 3500 calories daily. Im certain if he could boost his intake for even 2 or 3 days he would feel immensely better than he currently does. If nausea is a problem, he should take anti-nausea meds every 4 hours around the clock or so as directed. If he skips a dose he can easily not be able to get ahead of the nausea for days. No matter what the reason is behind your husbands avoiding eating and drinking he must change this or he will only suffer more than he has to.
Print out a bunch of posts that you think would help your husband to pull himself out of this cycle. Dont say a word to him but it works best if he sees you studying the posts. Then leave the printed posts somewhere he is bound to find them. Most people will be curious enough about what you were reading so intently that they cant help themselves, they will pick up the stack of posts and read them. Hopefully this is enough motivation to turn him around and get him back on track.
I cant imagine how difficult this is for you being your husbands caregiver. To watch someone you love in such a low point of their lives must be heartbreaking. Watching him suffer and feeling so helpless must be horrible. If you have any friends or relatives who have offered to help you it would be a great idea to get someone to help with transportation for your husbands treatments. It would do you both good and would give you a break, even for a day it would be a big help.
Im rooting for you both. Good luck!!!
PS.... Many patients find it helpful to talk to others who have been thru similar situations. I would be happy to speak to your husband if he would agree to talk to me. Ive talked to hundreds of patients and caregivers over the years. I went thru rads almost 10 years ago and I still remember it like it was yesterday. Let me know if he will talk to me and I'll PM you my number. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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