Elizabeth - Its so good that you found this site. We are all learning quickly that many docs do not treat this disease (condition) aggressively enough. Their hope, I am guessing, is to put you through the least invasive treatment possible - and that is a good thing. But oral cancers are really hard to treat and require real expertise. It is my belief that your health depends upon you finding a group of docs experienced with this type of cancer.

There are lots of good oral cancer docs out there, but they can be hard to find. The CCC outfits listed at this site will have the experience you need, and they can likely help you find doctors closer to home who can help carry out your treatment. It DOES make a difference what docs you talk to.

Some people speculate that many of the fatalities from this type of cancer were precipitated by incomplete treatment. Said another way, head/neck cancers must be very aggressively attacked with all the 'weapons' in the inventory - to keep them from coming back. The medical nostrum of "least invasive treatment" is very dangerous with our type of cancer. Please, seek additional opinions from other experts. It is NOT too late for you to do so. Hey, we here are kind of the Home Depot of the cancer crowd: "You can do it. We can help."

Many here are with you. Fight hard. Be strong. Tom