Many thanks, Christine. His last treatment was August 1, 2016. After an initial difficult period, he improved to the point that he could eat most table food and had regained part of the weight he had lost. He was looking forward to some family events and next summer in the mountains, and then a complete reversal. About 3 weeks ago he developed one, then a second ulcer on his tongue and he is back on total liquids because of the pain. The slide has been dramatic. We use many of the foods on your list; I think I could write a book on creating calorie-dense soups! But surprisingly, some things one would think would be fine he cannot tolerate, like baked potato. It changes sometimes daily. He has all the topical Rx pain relievers, plus opioids. He tries not to take the opioids, because he wants to be able to drive and not give up that independence. I know he cannot completely cure the radiation mucositis, but I am hoping I can learn some new tricks to help him relieve the symptoms and maintain his quality of life.

Spouse of 56 years has had radiation therapy (2004) and surgery and proton therapy (2016) for oral SCC in his tongue. No active tumors presently, but radiation mucositis is causing him severe pain. Affecting eating, talking, quality of life. Dealing with depression. Look for support and tips from those who have been there.