Welcome to OCF! Im so sorry you are going thru weeks of worrying. Are you a smoker or heavy drinker? Have you previously been diagnosed with oral cancer? There could be any number of things going on besides cancer.

From what Ive been told, a PET scan will pick up something thats about the size of a grain of rice. At this point, you know you arent able to get a biopsy until 1/3. Its likely to be another week before you get any results. That a long time to continue being on the edge of your seat. Waiting is not easy for anyone but its time you can spend on the positive things in your life.

Please do yourself a huge favor and limit the amount of time spent on worrying and "what if" way of thinking. At this point you do not have a cancer diagnosis so try your very best to put it out of your mind and go about your normal daily tasks. Worrying only makes everything much more difficult. It will not help you with anything productive. Being overly stressed only makes you upset which is unproductive and does not one thing to help anyone. Try to focus on what 3 ENTs said, they werent able to find anything abnormal except some mild inflammation. Maybe reading about the disease and about diagnosis could help to ease your mind?

Best wishes with everything!

OCF Main site ... Diagnosis Info


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile