 Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 8 | Hi,
I would just like to propose a slightly different point of view. The members who have had major side effects post rads probably HAD to have radiation and at a fairly high dose. My husband, for instance, had 70 grays which is the lifetime maximum. I don't know if in your case you can have less radiation. Has your RO spoken to you about that? I would start with finding out how many grays you are likely to get, and, if at a lesser dose, if the side effects would be less severe.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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