Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 8 | Welcome to OCF! Im very sorry you have a need for our group.
The only scientifically proven ways to kill SCC oral cancer is thru surgery and radiation with/without chemo. Unfortunately, that fact wont change no matter what your diet is. It doesnt matter what caused the cancer, its there and needs to be eliminated completely or its only a matter of time before it comes back. As you have read, many have had the same dilemma weather to continue with rads after surgery or take a chance with not further treatment. Im very glad you have chosen to go with rads to make certain the cancer is completely destroyed. Living without having rads, not knowing if the cancer is completely gone, only being watched by a doctor for many is a difficult path to take. I dont think I could manage always having "what if its not gone, what if it comes back" in the back of my mind every day.
There are 5-8% of oral cancer patients who have no known cause. The percentage of those patients who have been diagnosed with oral cancer caused by trauma is pretty low, probably even less than no know cause patients.
If you've been reading then you know I always advise patients to eat as much as possible before starting any type of treatment. Eat all your favorites and dont worry about gaining a couple pounds, most patients lose weight during rads. I know its not easy to eat after having such a big surgery. Do the best you can. Check at your treatment center is there is a dietitian or a SLP available to help you learn how to talk clearer and eat with the changes in your mouth.
Best wishes with yoru continued recovery. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |