Welcome to OCF! Congrats on finishing your treatments. Im sure you are glad its all behind you.

Your list of after effects should be brought to the attention of your ENT. Unfortunately many of these complaints need time to subside. After going thru what rads and chemo, recover takes a long time. Your body will need 2 full years to completely heal from the effects of cancer, chemo, and rads. I suggest to do your best to have patience and understand the recovery phase never happens fast enough for any patient. This can be very frustrating especially when going thru set backs during your recovery.

The tinnitus could be one of the permanent side effects from cisplatin. At the very first sign of any changes with hearing should be immediately reported to the medical team for a change in chemo. Getting additional doses of cisplatin after noticing tinnitus will only make it worse. Your ENT should be able to do a thorough exam paying special attention to your tinnitus.

The best advice I can give is to read thru our posts. Absorb the info and know you are not alone in your illness and recovery. We have all gone thru this and know how lousy you can feel. Plus we all want to be well and it gets upsetting when we dont see progress. To help with your recovery begin taking in at least 2500 calories every day and 48-64 oz of water. Ask your doc if its ok to add high protein whey powder to your diet. The extra protein helps with healing. Your body has been thru the war and is still in battle mode trying to rebuild itself. It needs extra fuel to recover and 2500 daily calories is the bare minimum to help with this. If you can take in 3000 it can only help you to bounce back quicker. I suggest the increase in calories, protein and water intake continue until at least the first year post rads. You can do it longer too, up to your 2 year post rads anniversary.

I hope all this helps you manage your recovery phase. Best wishes with your continued recovery.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile