I am very worried about weight loss! He never gained back his weight since treatments almost two years ago. I've been trying to pump as many calories as I can into him. I have a feeling they will want to put the tube back in to maintain him because he is very thin. I figured his jaw movement would never be the same, but even a little more mobility would be wonderful. I wish so much that he could chew food again. I'm glad you can enjoy simple pleasures like coffee and pastries

I agree that they should be upfront with the patients. What I really want is honesty from the doctors, which I don't feel we've had. His oral surgeon said "it doesn't look very good" after he did the debridement. I went back to meet him afterward and nothing at all was said to me, the doctor had already left the room. After a couple of weeks of not hearing anything new from his checkups I made a call to the cancer center. "It doesn't look very good" means you had better explain why. Well, that got things moving.