I would start first by asking where your husband was treated for his OC. Many ENTs or oral surgeons who specialize in OC perform this type of procedure. Or you can try at a Comprehensive Cancer Center (CCC). At a CCC you are more likely to find more doctors who have more experience in this type of major surgery.

Since our members are from all over the world, many members would not be able to help you with a physicians name for ORN surgery. Not all patients who have rads will end up with ORN. I was treated locally (at a Moffitt affiliated cancer center) for my ORN.

List of CCCs

Dont be surprised if the doctor asks your husband to first do HBO to prepare for the ORN surgery. Unfortunately HBO takes up lots of time as your husband will need 20 dives prior to the surgery and 10 after. Each dive takes approximately 2 - 2 1/2 hours. If the physician that you and your husband decide to use does not tell him to do HBO, ask them why not. ORN only gets worse if untreated and it can become very painful too. HBO helps the patient to avoid ORN down the road so it is an important step that should not be ignored.

Good luck!!!