Thought I'd come back with an update: finished radiation June 27, now waiting for my PET scan which is scheduled for October 3. In the weeks after radiation I couldn't eat much and was pretty weak and tired all day.

Now it's almost 3 months later, I feel pretty healthy, energy wise. I did end up losing over 30 lbs but I've put 10 of that back on in the last month. My mouth and throat have stopped hurting and the nausea is gone, so I can eat just about anything except spicy stuff, that has double the 'burn' that it did before treatments, and I LOVE spicy foods, (Indian, Mexican, Greek).

My taste buds are shot as is my saliva production. The dry mouth is the worst thing I have to deal with now, and waking up every 90 minutes for another sip of water all night long, and having to get up to pee every 2-3 hours sucks too!

Does that ever go away, or am I going to be carrying a water bottle with me everywhere I go for the rest of my life?

I can still feel a little pain at the base of my tongue where the tumor was, I hope it's not coming back already! I guess I'll find out for sure after the PET scan in a couple weeks.

Thanks for your help and kind words.


diaginosed SCC 4/16
HPV 16 base of tongue
radiation only, no chemo, 30 treatments
last treatment 6/27/16