Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 8 | The fact that you have already lost 20 lbs before treatment starts is a matter of concern. Your body needs to have all that energy to cope with the treatment and the side effects. I guess that is why your doctor suggested the feeding tube.
Have you had a chance to look into accommodation at a Hope Lodge near to your hospital? ChrsitineB probably has all the details. It will save you and your father from the long trip back and forth each time you need treatment.
In preparation for the consult, write down all the questions you may have for the doctor and make sure you get the answers to all of them. They could be questions about your condition, the treatments, the possible side effects and how to deal with them, the length of time needed for recovery, etc. Having the answers to the questions will help you prepare well for what may come and give you a measure of control.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. |