HI Rosalie, may I ask if getting implants has proceeded. I am having a very tough time finding someone to handle my implants because of how the fibula bone and flap were done. There is one dental surgeon at UCLA who is in charge of the implant department and has gotten a DaVinci machine and wants to try it with that. It's going to be a series of surgeries. The first of which is to just debulk the flap. Then 4-6 months later, more debulking and attempting to get the attempts in. It is certainly a process, and zero guarantees for my case I've been told.
Best,
Phyllis
Dx 1992 sccS1 l lat tongue. Surgery
Dx 1994 sccS3 l&r lat ton. Surgery & 40 rad tx.
Dx 2007 scc BOT S4. Cisplatin&Erbitux, 35 rad-no effect. Major surgery. Flap attached to front of tongue. Diff voice, PEG. Metas to rt lower lung - easy surgery to remove 4 small tumors.
Dx 2014 - SCC S4 remainder of tongue,flap,floor of mouth. Full glossectomy, lower jaw mandibulectomy (even tho no cancer there - yep, you betcha I'm angry over this). Trach remains. PEG remains.
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