Thanks for clarifying everything Thomas! This now makes much more sense to me.

I would advise you to do your best to ignore the nurses comments and wait until you speak to your physician. Im sure the nurse meant well and was only trying to help but saying that to a cancer patient is devastating to them. Which doctor ordered the PET? Thats who should be reviewing it with you. A nurse is not qualified to give their opinion on the PET reading. Going to the radiation oncologist may not give you much info. Since you recently had rads, its unlikely rads would be an option. You may get sent to a medical oncologist (chemo doc) next. At this point, not much is known yet so to save further delays I advise start trying to find someone for a second opinion. That way you are prepared just in case you need further treatment. But please dont jump ahead of yourself, take it step by step. Right now you dont know if anything is even wrong. I suggest you try your very best to enjoy yourself, see friends and family, go out and do interesting things and live it up. Cancer and the unknown spot are like thieves, dont let the unknown steal away your time with excessive worrying. It only makes this even more difficult.

If its possible to select a comprehensive cancer center (CCC), that would be the best choice for a second opinion. At a CCC a team based approach is used so all the specialists work together to make the treatment plan. Its called a tumor board where the doctors get together and discuss each individual case. The patient is able to attend as well. The CCCs also attract the brightest doctors so hopefully this is an option for you.


List of CCCs

Best wishes!

Last edited by ChristineB; 08-30-2016 06:41 PM. Reason: added info

Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile