Welcome to the forum. I am sorry that your dad has need for a PEG tube six months after treatment. I can understand your concern and his frustration. My husband was on a feeding tube for two years after radiation and had major problems with dysphasia.

The swallowing exercises are important. They keep the swallowing muscles working so that there isn't further degeneration of their functioning. My husband's esophagus was totally closed by scarring from radiation but he kept doing his exercises in the hope of finding a doctor who could perform a procedure to open up the esophagus. Indeed, when his esophagus was finally opened, he was still able to swallow. The SLP's who did the swallowing assessment at that point credited that to his continued effort with the exercises.

I also need to let you know that six months after his esophagus was opened and six further dilatations later, John's swallowing deteriorated, he developed silent aspiration and had to be on thickened fluids. So, the situation is a tricky one and requires constant monitoring.

Did the doctor who did the swallowing assessment recommend thickened fluids? If so, what grade fluids (nectar, honey or pudding)? If you father is aspirating when he swallows liquids, then there is a good chance that he needs to have thickened fluids. Fluids can be thickened with a commercial product (in Canada we use "Thicken Up"). Anything that he puts in his mouth, including water, has to be thickened. I know John hated this but there's no other way to drink liquids safely. Your father should also avoid things like ice chips, ice cream, jello etc -- i.e. Things whose consistency can change when they melt. Also do not allow your father to use a straw. It is simply not safe and can lead to aspiration.

Aspiration is dangerous as it can lead to pneumonia. John had repeated bouts of pneumonia. The problem with this kind of aspiration is, no sooner is the pneumonia cleared, then another bout would develop. It will help if you can monitor your father's general condition carefully.

Dilatation will work if the cause of the swallowing problem is a narrowed esophagus. There are also risks related to dilatations, for example, the esophagus can tear in the process. The procedure needs to be repeated because the doctors can only stretch the esophagus so much each time.

If your father complains about pain or a burning sensation when he is swallowing, then chances are what he is swallowing is not the right consistency for him. John was given "honey" grade fluids to try one time, and, believe it or not, it was too thick for him and he had trouble getting it down. At the time, he was on "nectar" grade fluids.

The SLP told us that one will aspirate on one's saliva and eventually it will "catch up with you." It sounds ominous, but the reasoning is if one is careful about everything else one swallows, then aspirating the saliva only may not lead to frequent occurrences of pneumonia.

I am afraid I don't know anything about vitalstim therapy. It is best if you consult your doctors.




Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.