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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! Im so sorry to read about what your husband has been thru. I will do my best to assist you as much as possible. Please understand that our site is made up of OC patients/survivors and caregivers. We dont have the knowledge or training medical professionals do, but we have learned from going thru this ourselves.
It sounds like your husband is staying in the hospital while getting his rads. If he is in week 4 of 6 then he probably is feeling pretty lousy. The radiation builds up making the treatments get progressively more difficult as more side effects are occurring. From what you explained, it sounds like your meeting Thursday is going to review exactly what you described. With the spread of the cancer into your husbands spine, the doctors are not able to completely eliminate it. The treatments he is continuing to receive are only to manage the cancer probably in an attempt to keep it from spreading further.
Im sure this probably sounds like a long shot but there is a newly available FDA approved drug that has shown huge promise in working with the patients immune systems when the cancer has spread to the lungs. Im not sure if this is an option for your husbands situation, but at least its worth a mention. These new immunotherapy drugs are called immune check point inhibitors. I suggest asking what his doctors think about using Opdivo (nivolumab) from BMS, and Keytruda (pembrolizumab) from Merck.
Wishing you all the very best. Please stop back and keep us posted. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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