I live in the black hole of national cancer institutes. If I am to do a clinical trial I will have to move there and would only have my wife's support. I am at least 315 miles away approx 4 to 6 hrs away.

I did ask oncologist to try to get Opdivo on a compassionate care basis. Still haven't heard anything.

I also sent my info to UAB in Birmingham as it is closest. I haven't heard back yet.

I am told I have a difficult tumor type. I am not being treated now. I feel like I am just suppose to wait and die.

What does one do in this situation? I have tried numerous avenues for help and housing to no avail.

I saw my PET my lungs are covered with lots of nodules.

I have developed a deep continuous cough.

Last edited by larry6905; 06-25-2016 09:17 AM.
T4,N2,MO SCC of the BOT hpv+
Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015
PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015
Clear 4.9.2015 PET/CT H&N.
11mm low SUV nodule RUL on lung PET/CT
2nd PET 8.25.15 10+ numerous nodules bi later lungs
9.9.15 Lung biopsy SCC Org BOT
Avastin and Torisel clinical trial 11/15-3/16 MDA
Home 5/23/16 Pet scan 50% growth & +SUV
Opdivo 6/2016
Synthroid 100 mcr
Scan tumors shrinking
Teeth decay 9/2016