Larry, its not easy to answer your question. I have no doubt we all want to help you interpret the PET. Please understand that our group is made up of survivors/patients and caregivers, non medical professionals. We dont have years of medical education, training and patient experience behind us. We simply arent qualified to read the PET results to have a complete understanding of everything thats written. This is why its so important to talk with the attending physician and get the test results explained in detail by doctor who ordered it.
A second opinion is never a bad idea. Having a second set of qualified eyes look over all your tests, a thorough exam, and talk with you will help. To me, your case appears as a complicated one, if at all possible do you have access to a Comprehensive Cancer Center (CCC)?
List of CCCs This may have already been discussed with you (and I apologize if its a repeat) but just in case it hasnt... have you looked into the new immunotherapy drug, Optivo? Please take a look at this thread, I hope it will be of some help to you...
Immunotherapy Trial/Drug Best wishes!!!
