Dear Sheryl, Four surgeries in 18 months is a lot. It's good that Charles is able to get the peanut butter smoothies down. The extra nutrition will help him cope with the treatment better.

Is he finding it hard to talk about his situation? Has he got access to a psychotherapist at the hospital? John saw a psychiatrist after he found out about the metastases. I think it gave him a chance to talk about things that he wasn't sure he wanted to talk to me about. I, too, saw a psychiatrist who was and still is a great help to me.

John never really felt anything from the mets to the lungs. For him it was the chemo, the swallowing problems and the silent aspiration that caused him all kinds of problems. My understanding was, if the airways became affected, then the patient would have difficulty breathing. That was the reason John's MO suggested the two later treatments of radiation -- to zap the swollen lymph nodes that had appeared in his airways.

Keeping you both in my thoughts.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.