Charles had surgery again. Four surgeries in 18 months. This one was really rough. He had a racquetball sized tumor in his left tongue base. His surgeon re-built his tongue using his left pectoral. Surgery was May 30. He still cannot move his tongue. Surgeon is recommending another round of rads. This means all liquid diet and not using his electrolarynx. I'm trying to talk to him about where do we go from here. His listens but doesn't respond. He can text me on his iPad. He still has no symptoms from the tiny stuff in his lungs. I'm just wondering what the next chapter in this story will be.

I am getting a couple of Christine's magic peanut butter chocolate milkshakes into him every day.

Love to all,
Sheryl


Wife/caregiver to Charles
ENT diagosed SCC Rt Tonsil Stage IV, MET 6 lymph nodes in neck 1/2001
Tonsillectomy, RND and six weeks RADS 2/2001
ENT diagnosis from CT scan, SCC in Rt tongue 2/13
25% of tongue removed 2/13 (clear margins)
SCC BOT with mets to 2 level 2 nodes and Lt. Delphian node 8/2014
Surgical biopsy shows cancer in larynx 9/2014
Laryngectomy, resection & rebuilt tongue w/ pectoral muscle, selective neck dissection 11/2014
Recurrences '16 HPV Neg No EGFR Mutations Detected