OP Supporting Member (50+ posts) Joined: Nov 2014 Posts: 73 | Ok spent 6 months on Torisel and Avastin. Had pet in May nodules 10+ and grew some twice size. Am trying to take a break until possible molecular treatment available. Has anyone had experience with? I was told 2 months or 18 months. But if I am having quality of life I should wait a couple of months. So anyone know of anyone using successfully molecular therapy for h&n met lung decease? Greatly appreciate input. Really want to stick around if I can. Thanks Larry
T4,N2,MO SCC of the BOT hpv+ Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015 PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015 Clear 4.9.2015 PET/CT H&N. 11mm low SUV nodule RUL on lung PET/CT 2nd PET 8.25.15 10+ numerous nodules bi later lungs 9.9.15 Lung biopsy SCC Org BOT Avastin and Torisel clinical trial 11/15-3/16 MDA Home 5/23/16 Pet scan 50% growth & +SUV Opdivo 6/2016 Synthroid 100 mcr Scan tumors shrinking Teeth decay 9/2016
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