Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | Hi Mark - sorry to hear about what you've had to go through. You sound like a brave and strong person.
I have to second what Christine wrote. She's extremely knowledgeable about these matters and many people have come to rely on her advice. But I think any of the rest of us would say the same thing about the idea of treating yourself. That is, it's great and courageous in theory, but the docs know what they're doing in these cases.
Also, each of us reacts differently to these therapies. What could create a lot of side effects for one person might well not be as extreme for someone else.
Her advice to get a second opinion is a good one. Why not give it a try and let us know how it turns out?
My thoughts with you.
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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