Welcome to OCF. Im sorry to hear you have had to go thru a full glossectomy. Thats a very long complicated surgery. For only 2 weeks out, it sounds like you are doing very well.

As Admin, Ive read every single post for the past 6+ years (Ive been here for almost 9 years). In that time Ive seen many members come and go. Some move on and back to their old life before cancer, some stick around to help others and sadly many have passed away. But the phrase "I am treating myself" is one Ive never heard before. Of course eating healthy is the best thing anyone can do, it wont eliminate any remaining cancer cells. I have to say while I admire your tenacity to be your own best advocate, please rethink your decision and listen to your doctors. How about going for a second opinion?

Most patients with feeding tubes hate having it. My doctor advise me that if I could sustain myself for at least one month without using the tube and not losing weight then it could be removed. I would ask for a barium swallow test to ensure you can properly swallow things and you arent aspirating. A tiny amount of liquid going into your lungs will cause problems.

Best wishes with everything!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile