Just an update on this end...

I have been treated with a "prednisone blast" for 5 days, along with all of the other things I have been doing.

I saw my PCP and mentioned to her that I looked at the final written report from my recent CT scan of my chest. I am now easily able to look at test results via the Mass General Patient Portal.

When I saw my MO after the scan, she said everything looks great. The only thing that I saw that I had no idea about was that I have a 3 mm ground glass nodule in my right lingula. The report said that it was stable from my CT scan of my chest the previous year. Again, I had no idea it existed. I guess my doctors know that I worry about every little detail and perhaps they didn't feel it was necessary to tell me about it. I'm assuming a lot perhaps.

Anyway, I mentioned it to my PCP and she said that it should be addressed by a pulmonologist. Given that she recently diagnosed me with uncontrolled asthma and recurrent respiratory infections, she has referred me to a pulmonologist that I will be seeing soon. The doctor's office requested to see the films on CD and not just to read the report, so I know that he will be thorough when I see him.

I'll keep you all posted on this, too!


Love in OCF,
Kerri

37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!