Thank you Christine,

I am looking into therapy to help our girls and am still waiting on his ins to give him an out of network approval for the ccc that he had 8 years ago. The ccc has been very helpful and are so thoughtful calling me with updates on his approval.

I will look into speak it that might be very helpful if he is up for trying this.

I spoke to you on the phone in the past in regard to his eating before he got the peg and the canned peaches was a great suggestion for him. At that point he could eat them and I am hoping one day he can do that again.

I will ask them about clinical trials I know nothing about them but maybe they can give us a way to make him more comfortable.

Thank you so much for your response it is greatly appreciated!!