Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Samantha,
I'm so sorry this diease has hit your family. Wherever your mother is being treated (and I hope it's a CCC--I see you're from Boston and Dana Farber is where I would have gone if I could have gone there easily), she (and you) wil need the help of a hosptial social worker as well to be sure she gets the support she needs when you can't be there for her.
It sounds like her being so thin is also going to be of real concern, since people going through treatment for this often lose weight. It sounds like you are going to the appts with her next week and that's good. Take a long a list of questions to ask and a tape recorder so you don't have to be writing down every bit of the answer and you can go back and listen later to be sure you haven't forgotten anything they told you.
There is lots of information and wonderful support available here. Come back and let us know what the doctors say and ask questions or just vent whenever you need to.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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