Sorry to hear about your sister's condition. I agree that she should get at least two opinions about how to treat this. The ENTs are surgeons and they often offer surgical solutions. The oncologists are the chemists and they think in chemo terms, etc. Get more than one opinion. Talk to a doc outside of ENT discipline. Get a 'team' of docs and docs from different disciplines.

Ask every one of them: "What are ALL the options for treatment?" Get them to talk to you about the relative pros and cons of all the different treatment plans - and there are many. If the doc you ask doesn't seem to know much about options other than what s/he is offereing you, find another doc. You don't have to become a doctor to make sense of it either. You will begin to hear some ideas and options from more than one doc. Certain things will make more sense than others. Confidence in the doc you choose is really important.

This type of cancer is not common, so find people who have treated THIS particular cancer before (and more than once!) Question everything and keep all your treatment team accountable. The good ones have no problem with that. Keep us informed. Be strong. Tom


SCC BOT, mets to neck, T4.
From 3/03: 10wks daily multi-drug chemo,
Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.