Amanda, I'm sorry to read this. I know all to well that awful feeling when you are told this news.
Please get yourself to a Comprehensive Cancer Centre. These big centerrs have a tumour board and do a team approach to treatment. Research shows that they get better outcomes for their patients.
Please also tell your Parents. If you were my 26 year old I would want to know and I would do all I could to help and support you through this. You will most likely need both physical and emotional support to get through this.
I am not in the USA, but someone here will tell you which are the CCC's. At least get a second opinion before starting any treatment
Thinking of you,
Tammy.


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!