Uptown,
I'm so upset to hear this - I am upset for you and all long term survivors.
My husband had a go-around with neurology for numerous symptoms a few years ago (sudden numbness in hand, pain & numbness one side of face and one side of head, etc.). Routine neuro testing was negative. It all stopped before further investigation was required. I think radiation is probably the culprit.
Have you found out any more? I know you have been struggling with severe rad SE. Did you already know about this dysfunction? Please let us know how you are doing. Lottie
CG to husband, dx @ age 65, nonsmoker/social drinker. Dx 5/08 SCC Stage IV, BOT T1N2aM0. 33 IMRT - completed 9/12/08. Induction Chemo (Cisplatin, Taxotere & 5FU), plus concurrent Cisplatin. 1/09 PEG removed; 5/09 neg PET/CT; 5/10 PET/CT NED Dental extraction & HBOT 2013; ORN 2014; Debridement/Tissue Transfer & HBOT 2016
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