 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! Have you considered getting a second opinion from the CCC near your home? If a CCC is an option, it would be a smart choice to at the very least investigate it. Studies has proven CCCs have better results. They use a team based approach and have proven track records of treating more cases than a smaller facility.
Best wishes!
PS... Ive sent you a private message (PM) with info to help you in posting and how to add your signature. To get your PM, towards the top of the page next to the My Stuff tab click on the tiny flashing envelope.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
