Yes, you are right Corlis, this is scary. Just getting a cancer diagnosis is enough of a shock to make most of us lose our hearing. (Im kidding) Im talking about when you are first told you have cancer, most of us never hear anything else the doctor says.

Oral cancer can be a tough one to get thru. The treatments are brutal to say the least. You will want to get thru this once and hit it with everything so hopefully you never have to go thru it again. I would really stress the importance of getting a second opinion at a CCC. Studies have proven patients treated at CCCs have a better survival rate. If you can get to one I strongly urge you to go right away. Time is important especially if you have noticed any changes.

Remember the medical team is there to work for you. Sometimes they need a little nagging to move things along. Dont be afraid to stand up for yourself and ask for an earlier date instead of waiting. My concern is that you have not been given a definite date for the surgery yet. After being diagnosed 2 months ago and now having to wait at least 6 more weeks to be treated to me sounds like a long wait. This is another reason I advised you to get a second opinion. To me it doesnt sound like they are treating this with the urgency it deserves. I hope Ive gotten the wrong opinion and they are much better than what I took from your original post.

Please start making some calls tomorrow morning to try for a second opinion.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile