Best advice I can give you on how to keep your stamina up during rads is thru your intake. Every single day push to take in at least 2500 calories and 48-64 oz of water. This is the minimum! If you can take in 3000 or more calories daily you will have a much better chance of being one of the lucky ones who sail right thru treatments. If you will be having chemo, you want to push the water on those days and the first day or 2 afterwards. Water is even more important if you have the 3 big doses instead of the smaller weekly doses, which are usually easier to tolerate.

As far as driving or working goes this is a very individualized question. If you are like most of us and taking strong pain killers (or the medical cannabis you discussed on your other post) then driving (especially long distances) probably wouldnt be the best plan. The American Cancer Society has volunteer drivers who can help take you back and forth to treatments or doctor appointments. Im not sure of their availability so its best to get set up with this as soon as you can if you anticipate needing help driving to rads.

The pain at the peg site could be scar tissue or granulation. This can be very painful! As a long time feeding tube user myself, I can imagine how much it hurts you to have the doctor pushing on the lump. Care must be taken to pushing around that site to avoid having the feeding tube being dislodged which would then cause bigger issues and need to be replaced. If you dont see an improvement after following doctors advice to leave it uncovered try to cover it up and see if that helps the skin irritation. A 4x4 drain sponge to cover the site would keep it dry and absorb any leakage. Its fairly common for feeding tube users to have a slight leak around the site.

Good luck!!!


PS... Please review the link Ive PM'd again and add your signature. Look next to your My Stuff tab, click on the tiny flashing envelope to get your PMs. By adding a signature, it will GREATLY help us to help you with pertinent advice. Thank you very much