OP Contributing Member (25+ posts) Joined: Jun 2015 Posts: 25 | Hi Cheryl, My precise question was would it continue to spread and their answer was no it shouldn't and if did we would have a bigger problem on hand. Perhaps due to the intensity of the TPF and the fact that it will treat my entire body rather than the targeted areas only that radiation treats. If the tumor responds to this then that's a good indication it will respond to radiation. Not all rumors respond to radiation--that I learned as well so the TPF gives my doctors some good info in that respect as well.
Two amazing hospitals so here I go!! Fingers crossed my tumor responds!! My friends and I have named this beast---I was calling it the nightmare or "flipping" nightmare in my mouth so they started calling FNIMM (pronounced Fennim lol). Gives me something to address and put on notice. Sometimes ya just gotta laugh in this fight or it a all becomes just too much.
DX 6/5/15 Stage 4a SCC left lateral tongue, tumor involves 90% of my oral tongue LVI and PNI identified Med Port and PEG 6/23/15 Started Cycle 1 of Induction Chemo (TPF) 6/24/15--3 cycles in total 35 External Radiation sessions and concurrent chemotherapy (2 additional rounds of Cisplatin) Brachytherapy Remission as of 2/17/16
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