Update on me: got my pet results. Not what I was hoping but not as bad as feared. Not other organs affected but several places in the right chest. Testing for mutations etc is still not back. They still can't tell me definitively that it is not from my tongue but initial pathology did say NSCLC. I was always under the impression if it was SCC from the tongue it woukd come back as SCC not Non Small Cell. Anywhoo, I am getting my butt to MD Anderson as soon as possible. Both my dr and I have already called for the appointment. Should hear back today.