 Supporting Member (50+ posts)
Joined: Jun 2014 Posts: 86 | Hi everyone.
I am writing for my brother Brandon. We went to our 2nd opinion on Thursday at another NCCC. We have two in Michigan. Brandon is being treated at one and the 2nd opinion was at another. The 2nd opinion chemo doctor agreed with Brandon's primary chemo doctor. That he would not recommend chemo as there is no proven study that it would help Brandon. Brandon can be cancer free right now besides the microscopic cancer cells. We asked if he can do a clinical study and they said no because there is no proof that he still has cancer. The doctor said he can offer the chemo but he wouldnt recommend it. He suggested that Brandon gets a second opinion on his previous surgeries. He said it wont hurt to get a second opinion on how his surgeon did. He wasnt saying anything bad about his surgeon but said might as well get another opinion. BRandon will be getting a second opinion on his previous surgeries with a different doctor on Wednesday.
22 YO Brother Dx 6/17/14 w. SCC R Lateral tongue
CT scan clear LN 6/20/14
HPV-, non-smoker
R tongue, right hemiglossectomy Surgery 6/24/14
(Not reoccurrence but went to NCCC instead
R neck dissection, tracheostomy, radial free flap, R tongue dissection surg 8/11/14
PT1N2B.3 positive lymph nodes out of 13
Extranodal extension present
9-15-14 IMRT (35x) & Cisplatin (2x) begun
10-21-14 peg in. 10-31-14 1 round of carboplatin
11-4-14 IMRT rx comp
3-27-15 Recurrent tumor in lymph node, L neck diss.
10-29-15 brother passed away, 23 yrs old
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