Hi all, my name is Rhoda. I don't know if my situation is unique or familiar to anyone else, but I have had a 40 year relationship with oral leukoplakia (tongue), squamous cell dysplasia, p16+, HPV16 negative. I have pre-cancer that has been kept at bay with countless number of surgeries. My tongue is becoming really compromised and have been told that there is "no treatment" (other than surgery). Looking for options, praying for miracles. Eager to share my experience and offer whatever I can back into the mix. Looking forward to being a part of the group.