Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Heidi, thank you for sharing that. You did exactly what was being asked, provided first-hand experiential knowledge as a caregiver. It takes a lot of strength to be able to succinctly and rationally portray what you lived through.
My mother had an aortic rupture as her metastatic ovarian cancer ate through the esophagus and then aorta. While it was expected, the medical team had not explained what would happen. It was quick, but the surprise element was very difficult.
While it may not be the easiest thing, gaining insight and being somewhat prepared is invaluable.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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