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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! Im glad you found our group. You arent alone in this. We have several members who have had total glossectomies and understand the struggles you go thru.
Being depressed is common with OC patients. Its not easy living with a new changed life. I do it every day too. Im now disfigured after losing half my lower jaw to OC. Being different in a society thats all about looks is very difficult. Have you considered seeking out someone you could talk to? Many patients and even caregivers have been greatly helped by therapists and some take anxiety meds. They are all tools to help make it thru the day.
Hang in there! We really do understand where you are coming from. We are right there with you going thru the same things.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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