 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | When you have the doctor in the room, shuffle towards the door and say you need some questions addressed. There is no excuse in leaving you dangling like that. Can you email the nurse? I used to do that to keep the dialogue going.
It sounds like there is a fissure or some kind of hole from the floor of the mouth surgery. That would explain the drink leaching out. What Alpaca is saying makes a lot of sense.
I am really sorry for what your mother and you have had to endure. It sounds horrific.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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