Uptown

The oncologist didn't mean a communication problem between any conversation such as understanding each other. When I explained what was happening with this open wound he briefly examined my mother and said you have a communication problem going on here. I asked what do you mean and he repeated she has a communication problem. Well I ask Is something in her throat not working properly ? I don't understand. He didn't give me an explanation. I called today and talked to his nurse she is suppose to call me in the morning to explain what he is talking about. I asked her did he mean the cancer is causing this and she says oh no not at all. Well I say what does he mean and it needs to be addressed. I will get this straight in the morning for sure.

Egan Home Health has been coming to the house for home health and wound care but I am not satisfied at all with the services. In the past four weeks the nurses haven't even come with any wound care products. Not even as much as a piece of gauze or band aid. I was being told supplies were ordered over and over. I was going out and buying what I could but I'm sure it was not the correct materials that should be used.
I called and canceled there service.

This morning my mom met with a very good wound care specialist. He is recommending Hyperbaric Oxygen treatments. I know it may not be good as far as the cancer goes but the specialist said "Its 6 in one hand and half a dozen in the other" at this point. She just cannot stay in this condition. This wound care doctor is going to speak to Oncologist and discuss what he recommends. The wound care doctor is also making arrangements for a new Home Health company to come to the house.

A scan is also being scheduled to see if there is any success with the treatments. If not then there is no sense in going any further with this route . Hopefully MDA will recommend what treatment if anything can be done. MDA did say if she shows any progress with the current treatment then she may be able to do a clinical trial going on but she must show a sign of the cancer responding before that can happen.

Thanks
Heidi

Last edited by sweetpe1; 03-09-2015 08:56 PM.

Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015