Connie keep me posted on the clinical trial. Hopefully he does well and starts soon!. I've read your posts before on your dad - glad to hear he keep pushing forward to find something for him. Right now my dad is doing a combo of carboplatin, taxol and Erbitux for chemo. He's doing weekly infusions over 4 hours and so far so good (fingers crossed). I know everyone says that chemo isn't a good option for OC but I am hopeful that my dad will be a miracle. We will see how this goes. In the meantime, the doctors are keeping an eye on any clinical trials he may be eligible for.

My dad had a skin metastasis on his neck but it doesn't fit the normal case where it grows quickly....it popped up quickly but thankfully appears stable. I inquired about proton therapy and other treatments such as photodynamic therapy but they are saying it isn't an option right now because this is a systematic issue although it appears local so chemo and immunotherapy are best. My dad has had a decent reaction with doctors saying it is better than they expected. He's experienced some nausea and mucositis thus week. Hoping things keep progressing forward.



Caregiver to father
DX:4/14 Surgery:5/14 resection, ND
TX: 33 IMRT complete 9/14
Scan: 10/14, suspicious area tongue & neck.
Biopsy confirmed SCC BOT 2nd Primary, right lateral tongue.
11/14: surgery partial glossectomy, pec flap, trach, NG tube, ND
12/14: debridement surgery, small area removed for clear margins
12/14: biopsy positive for SCC dermal metastasis
1/15: chemo: erbitux, taxol and carboplatin
3/15: 5FU, Erbitux
8/15: enrolled in PD-1 Immunotherapy
9/15: Heaven got a new angel <3