OP Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | It's been awhile since I posted ... after we were done with treatment, I had a horrible time with my feeding tube and its removal, and then I pretty much avoided everything even remotely related to my illness, including all the hobbies I did to pass the time while I was sick. But much as I hate it, coping with the after-effects just doesn't go away.
I've been incredibly tired since treatment, which I figured was normal, but I was getting frustrated about it all. I had a physical scheduled with my regular doctor this past week. I hadn't seen him since all the cancer stuff happened and he sent me on to the specialists, though he's been keeping up with the reports. Anyway, I wasn't expecting anything ... but it turns out my thyroid is all out of whack.
I guess it makes sense ... we did zap it, after all ... and it certainly explains the fatigue ... but I wasn't expecting it. I am glad to have a REASON why I have been so miserable, but I am also facing up to the fact that now I have another medical complication I have to deal with. He's starting me on Synthroid and I see him again in six weeks to see how things are going.
Anyone else been here? Tips? Advice? Things to avoid that I might not realize will affect me due to the cancer? Things to make this easier?
Just so overwhelmed. I know I've had it relatively easy, but will this never end?
Kristen
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
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