Larry,

I seem to have had as poor a reaction as anyone and was unable to swallow probably for a good 4-6 weeks. One thing that helped me was to take on a lot (and I mean a LOT) of fluids through my tube (especially Gatorade type things) and then rinse my mouth with seltzer water/ginger ale. Following that, I would brush my teeth with a mint toothpaste, rinse, and practice swallowing a few times -- just water. This did burn kind of crazily, but it helped me.

I know it sounds insane and maybe it was just my own little routine, but the extreme hydration through the tube combined with using the carbonation to thin the throat/mouth gunk seemed to make swallowing easier. Also, the mint in the toothpaste seemed to kind of numb my throat a bit.

I have no idea if this works for anyone else, but it helped me swallow a few times a day at least. I hope I'm not steering you wrong here.

Good luck and try to remember (from someone that really struggled as well) -- it never hurts as much in your memory as it seemed to at the time.

Hang tough!

The Hellion

Last edited by TheHellion; 12-05-2014 10:34 AM.

SCC Base of Tongue
Diagnosed 3/5/2014 T2N2C
PEG Installed 3/19/2014
Chemo/Rad 3/27/2014
1x Cisplatin, 4+ TaxoCarboplat + 33 * 70 gy
Chemo FINISHED 5/5/2014
Rads FINISHED
PEG tube removed 10/08/14
Back to work 4 Aug full time
1/19/15 - diagnosed mets to lungs
7/17/15 began Pembrolizumab clinical trial demitted October 2015
1/14/16 began Tremi-MEDI trial
-This far, no further! On ne passe pas!

**update** passed away 3/26/16 RIP, you will be missed by many