Well, we met with the CO today and he's very pleased with hubby's PET scan. smile
He said a bit of a hot spot but no hyper metabolism uptake at all. Hubby is holding his weight pretty nicely 2 weeks post PEG tube removal even though he's been pretty limited in what he eats. So, a happy day for us, to be sure! He will now continue with monthly scope exams with his ENT or RO and won't be back to his CO until Feb. His blood chemistries are still a bit out of whack. Low potassium, low WBC. The only thing they appear to be concerned about is his potassium. He's been on those horse pills since August. Has anyone else had funky labs 3 months or more PT?

Thanks for all the replies. Don't know what I would do without you all.

Carol

Carol
Husband diagnosed SCC BoT 4a-June 4, 2014
Mets bilateral lymph nodes
HPV positive
Tx started June 23, 2014
Blood clot in cephalic vein of right arm after first chemo
2x Cisplatin (hopefully getting in 3rd)
35 IMRT (hopefully complete on Aug. 12)
third Cisplatin cancelled
Last day of treatment Aug. 12, 2014
PET scan Nov. 10-NED (some PT inflammation)