Larry, are you able to go to a comprehensive cancer center (CCC) to get treated? They use a team based approach where ll the specialists are on the same page and work together making your treatment plan. I can send the list of CCCs if you need it. Ask the doctors if this is related to the skin cancer you recently had.

Wonder why the doctor told you not to leave town? To me that sounds like an unusual request for someone just diagnosed and not starting treatments yet. Im curious about what your doctor is doing when you have the PET. The PET is a test not a treatment.

Best wishes!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile