 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | EmilyP and Sweetpe, you two have just shown everyone the power of forums like OCF has. Taking someone geographically close and walking hand-in-hand with them through treatment is powerful for both! Most of the long timers do this behind the scenes as soon as we see someone in our local area. I personally believe what we learned on our journey can be used to help others. Thanking you for warming my heart today.
Last edited by Uptown; 10-28-2014 07:02 AM.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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