Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,293 Likes: 1 | Sorry to hear about the ORN. Not much to offer what to do. One thing I picked up along the way other than the standard HBOT is having a specialist who is very familiar with oral cancer survivors and is part of a team including the RO who brings in the details of the radiation plan and treatment into the discussion.
This makes a lot of sense to me as it provides much more detail where potential bone damage is likely and what might occur if teeth are extracted in those areas. Areas not receiving much radiation should be less risky than areas that were hit hard.
If one subscribes to the goal of leaving the tooth and bone alone then grinding teeth to the gumline seems like it provides more time and less disruption to the bone area.
I collect as much knowledge about ORN but hope to never have to open that folder.
Good luck, keep us updated.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com |