I'm sorry to hear this. I am a proponent of the positive studies done in Europe using a protocol called PENTOCLO. Pentoxyfilline/alpha-tocopherol/Clodronate. We can't get Clodronate in the US and it is called PENTO here. The people in the studies for the past decade have shown very good results. Here is a summary of the latest study from UCLA.

http://c.ymcdn.com/sites/www.scdaon...terials/The_Efficacy_of_Pentoxifyll.pptx

I do know from experience that it takes me a certain level of exercise/exertion to see results but it is miraculous. I believe this has prevented serious deterioration of the non-marrow producing cervical vertebrae. The improvement in blood flow has helped regain and maintain significant muscle.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023