Hello,
I had a total laryngectomy 2 years ago next month. I can only communicate through use of written word, usually my iPad.
I am finding it becoming increasingly difficult in getting my thoughts, ideas, and words across to people. I write exactly verbatim what I mean, but people interpret and assume things differently just as they do with spoken communication. I don't know what else to do and have been finding myself becoming quite frustrated to the point my close friends and family tell me I am becoming short tempered. I am feeling they are putting it all on me but there is no way else for me to say anything. I am not in their shoes trying to understand me and they certainly cannot put themselves in mine to understand the trapped feelings. Does anyone else ever experience this issue? What do you do? Is there any type of specialist to speak to?

Thank you!
Silent Cindy

'08 SCC Rt tongue,part glossect.
'09 Rt neck dissect, 3 Cisplatin, 35 rad.
Aug '11 Rt tongue,hemiglosstmy, Lt neck dissect, forearm flap, 8 Erbitux,30 rad, brachy tongue.
Oct '12 SCC prev stoma site. SCC inside trachea.
Nov '12 total larengectomy, addl neck disect, pec flap
Oct '15 Myelodysplastic Syndrome (form of leukemia)

Dec 8, 2015 passed away peacefully at home surrounded by loved ones
How Cindy wants to be remembered..."I want people to realize I am no longer trapped in this body prison, and I will be free and whole. I want to be remembered by all the good and loving times spent together, not in sadness."